Clinical phenotypes and disease progression

At present the diagnosis of MND comes with a venture into the unknown in terms of disease progression and life expectancy. This session aims to increase our understanding of clinical research that is being conducted to find an accurate way to provide people living with MND with information with regard to what to expect in terms of progression and life expectancy.

Kevin (pictured right with me writing this blog) found this session interesting as he found that it wasn’t ‘simply’ about the presentations given. He says that a lot of questions were posed to presenters that challenged their work and provoked further thought for all who attended the session.

It is important for us all to bear in mind that the symposium is not just a platform for researchers to present their work and it to be taken as true. Challenging ideas and asking new, unanswered questions is a way to move research forward. There were certainly lots of questions that were posed in this session leaving much food for thought. Certainly the presenters and the delegates have left the session realising that there is more work to be done. This is the point of the symposium.